Hiki i nā poʻe maʻi ALS ke kamaʻilio me ko lākou mau manaʻo

ʻO ka Amyotrophic lateral sclerosis (ALS) kahi maʻi i hōʻike ʻia e ka hōʻino ʻana i nā pūnaewele aʻalolo, ka hopena i ka nalowale o ka mana ma luna o ke kino. Ke waiho nei kēia i ka hapa nui o nā maʻi i loko o kahi kūlana lolo a kamaʻilio ʻole. ʻO ka hapa nui o nā maʻi ALS e hilinaʻi nei i nā mea nānā maka e kamaʻilio me nā poʻe ʻē aʻe. Eia nō naʻe, ʻaʻole kūpono kēia mau ʻōnaehana no ka mea e koi lākou i ka recalibration i kēlā me kēia lā e nā ʻenekinia. Ma luna o kēia, 1 mai ka 3 E lilo ana ka poʻe maʻi ALS i ka hiki ke hoʻomalu i ka neʻe ʻana o ko lākou mau maka, e hoʻolilo i kēia mau ʻano mea pono ʻole a waiho i nā maʻi i kahi "paʻa i ka mokuʻāina".

ʻO ka ʻenehana holomua

Ua loli kēia me Hanneke De Bruijne, he wahine 58 makahiki he kauka no ka lapaau kuloko ma Netherlands. Ua ʻike ʻia me ALS i ka makahiki 2008, e like me nā mea ʻē aʻe me ka maʻi, ua hilinaʻi mua ʻo De Bruijne i kēia mau mea nānā maka akā ua hoʻonui nui kāna ʻōnaehana hou i kona ʻano o ke ola. Ma hope o ʻelua makahiki, ʻo De Bruijne “aneane paa loa i loko” e like me Nick Ramsey ma ka Brain Center o University Medical Center Utrecht ma Netherlands, me ka hilinaʻi ʻana i kahi ventilator e kāohi i kona hanu. 

Ua lilo ʻo ia i mea maʻi mua e hoʻohana i kahi mea hana home hou i hiki ai iā ia ke hoʻokele i kahi kamepiula me kona mau manaʻo. ʻElua mau electrodes i hana ʻia i hoʻokomo ʻia i loko o ka lolo o De Bruijne i loko o ka ʻāpana cortex motor. Heluhelu ka lolo hou i nā hōʻailona uila mai ka lolo a hiki ke hoʻopau i nā hana no De Bruijne ma o ke kamaʻilio ʻana me kekahi electrode i hoʻokomo ʻia i loko o ka umauma o De Bruijne. Hana ʻia kēia ma o nā lālā robotic, a i ʻole kamepiula. Ma kahi papa i hoʻopili ʻia i kona noho hiki iā ia ke hoʻomalu ke koho ʻana i kahi leka ma ka pale me kona mau manaʻo a hiki ke hoʻopuka i nā huaʻōlelo e kamaʻilio me ka poʻe e puni ana iā ia.

I kēia manawa ua lohi iki ke kaʻina hana, ma kahi o 2-3 mau huaʻōlelo i ka minuke, akā Wahi a Ramsey ʻo ia ma ka hoʻohui ʻana i nā electrodes e hiki iā ia ke wikiwiki i ke kaʻina hana. Ma ka hoʻonuiʻana i nā electrodes 30-60, hiki iā ia ke hoʻokomo i kahiʻano o ka'ōlelo hōʻailona,ʻo ia ke ala wikiwiki a maʻalahi e wehewehe i nā manaʻo o De Bruijne.